Understand Ankylosing Spondylitis Flare-Ups (2024)

Ankylosing spondylitis(AS) flare-ups can be common. Researchers and doctors don’t have an official definition of what happens in an AS flare. But if you have one, you know it based on how you feel.

Your flare-up may feel different than someone else’s. One study looked at flares as generalized or localized, based on whether they affected the whole body or just one area. The most common symptoms were:

  • Pain
  • Extreme tiredness
  • Not being able to move well
  • Changes in mental health, likedepression

Some also had other symptoms, such as feeling like they hadthe flu,sweating, and afever. People said their joints felt hot and burning.Muscle spasmsand more sensitivity also happened.

More morning stiffness may be a sign that a flare-up is coming. Sometimes, you could have stiffness andfatiguethroughout the day.

Why Do AS Flares Happen?

There are many causes. Moreinflammationis partly to blame. Other ankylosing spondylitis triggers could play a role, too.

You may feel worse because of conditions you might have in addition to AS. Or you might have an injury or an infection. A weather change could even be the cause. And a flare might mean that in some way, your treatment isn’t working well enough.

You also set yourself up for a flare if you stop taking your medication or accidentally miss doses.

Still, some flares are due to random changes in how active your disease is, regardless of whether you’re on meds or not. Experts aren’t sure why that is.

Some people living with AS have their own ideas about why they might get flares. One small study found that people with the condition thought stress and “overdoing it” triggered their flare-ups.

How Can You Tame a Flare-Up?

When you have a flare, you may need painmedication. If you take NSAID drugs, your doctor may prescribe a higher dose.

If you take a biologic, the doctor may change the dose or the drug itself. They might do that if they think your medication isn’t working as well for you as it used to.

Other things that may help during a flare are:

  • Sleep
  • Relaxation
  • Gentleexerciseor stretches
  • Hot and cold therapy
  • A warm bath or shower
  • Massage

Once you know what works when your AS is more intense, you can create a list so you’re ready if it happens again.

What Can You Do Help Prevent Flares?

AS flares tend to be unpredictable. You may be able to help prevent some of them by knowing your possible triggers, like too muchstressor activity. But flares can also happen for reasons outside of your control.

Yourrheumatologistcan help you make a plan in case a flare happens. For instance, they can weigh in on whether to adjust how much of your medication you take during a flare and what other medications might help if you need extra help managing symptoms. Be sure to ask about:

  • What dose you should take, including the maximum amount
  • How often and how long you can use it

Take notes on what your doctor says, and make sure you can find these instructions later. When you do use medication, write down when you take it and how much you have, so you can stay within the guidelines your doctor gave you. And tell your doctor about everything you take, including over-the-counter medications.

When to Call Your Doctor

Reach out to your doctor if your flare:

  • Doesn’t improve with treatment after 7 days and you need help with it.
  • Is more intense or different than normal -- for example, it causes very strongback pain.

You should also track your flare-ups and tell your doctor if you start to have more of them or if they last longer.

Understand Ankylosing Spondylitis Flare-Ups (2024)

FAQs

Understand Ankylosing Spondylitis Flare-Ups? ›

Symptoms of an ankylosing spondylitis (AS) flare-up can include fatigue, back stiffness, fever, depression, and joint pain. To manage an AS flare-up, a person can try medication, gentle exercise, and heat or cold therapy, as well as other treatments.

What does an ankylosing spondylitis flare up feel like? ›

According to these studies, a typical AS flare is characterized by increased back pain that may be stabbing in nature or feel like muscle cramps. Symptoms can be local or more generalized. Increased fatigue and emotional upset are common. Episodes may last from a few days to a few weeks.

Why is my ankylosing spondylitis getting worse? ›

Ankylosing spondylitis (AS) can flare up for various reasons, including physical inactivity, poor posture, smoking, and not taking anti-inflammatory medications. AS is a type of inflammatory arthritis mainly affecting the back.

How do you calm ankylosing spondylitis? ›

Keeping active can improve your posture and range of spinal movement, along with preventing your spine becoming stiff and painful. As well as keeping active, physiotherapy is a key part of treating AS. A physiotherapist can advise about the most effective exercises and draw up an exercise programme that suits you.

What are the final stages of ankylosing spondylitis? ›

Some people who have early AS go on to have more severe disease. The bones of the spine can fuse together, a process called “ankylosis.” Doctors call this advanced phase “bamboo spine.” You can feel a lot of pain in your back, stiffness, and soreness, which could limit your flexibility and movements.

How do you get out of an ankylosing spondylitis flare? ›

How Can You Tame a Flare-Up?
  1. Sleep.
  2. Relaxation.
  3. Gentle exercise or stretches.
  4. Hot and cold therapy.
  5. A warm bath or shower.
  6. Massage.
Jul 27, 2022

How do you stop an ankylosing spondylitis flare-up? ›

Symptoms of an ankylosing spondylitis (AS) flare-up can include fatigue, back stiffness, fever, depression, and joint pain. To manage an AS flare-up, a person can try medication, gentle exercise, and heat or cold therapy, as well as other treatments.

What autoimmune disease goes with ankylosing spondylitis? ›

"B27 disease" is a new autoimmune disease that afflicts millions of people throughout the world. "B27 disease" occurs in individuals who have ankylosing spondylitis (AS) or preankylosing spondylitis and/or uveitis and are also positive for HLA-B27.

What are the worst symptoms of ankylosing spondylitis? ›

Main symptoms
  • Back pain and stiffness. Back pain and stiffness are usually the main symptoms of AS. ...
  • Arthritis. As well as causing symptoms in your back and spine, AS can also cause inflammation of the joints (arthritis) in other parts of your body, such as your hips and knees. ...
  • Enthesitis. ...
  • Fatigue.
Nov 20, 2023

What is considered severe ankylosing spondylitis? ›

If you have ankylosing spondylitis, the inflammation in the joints and tissues of the spine can cause stiffness. In severe cases, this may cause the vertebrae (bones in the spine) to fuse (grow together). When the vertebrae fuse, it can lead to a rigid and inflexible spine.

What should you not do with ankylosing spondylitis? ›

Things That Could Make Your Ankylosing Spondylitis Worse
  • Too Little Movement.
  • Poor Posture.
  • Cigarettes.
  • Weight, Foods.
  • Stress Problems.
  • Not Pacing Yourself.
  • Flare-Ups.
  • Treatment Problems.
Sep 25, 2023

What not to eat with ankylosing spondylitis? ›

Some foods can trigger ankylosing spondylitis, so it's important to avoid certain foods to prevent inflammation. These include foods that are high in fat, salt, and sugar; processed foods, dairy products, alcohol, caffeine, artificial sweeteners, and others.

What is the best pain relief for ankylosing spondylitis? ›

Medications. Nonsteroidal anti-inflammatory drugs (NSAIDs) — such as naproxen sodium (Aleve) and ibuprofen (Advil, Motrin IB, others) — are the medicines health care providers most commonly use to treat axial spondyloarthritis and nonradiographic axial spondyloarthritis.

What is the average age of death for ankylosing spondylitis? ›

Results: The study comprised 5,930 AS patients and 29,018 matched controls who were followed up for a median period of 7.5 years. There were 667 deaths within the AS cohort and 2,919 deaths within controls; the mean age at death was 76.9 years and 77.1 years, respectively (P = 0.74).

What is the peak age of ankylosing spondylitis? ›

AS occurs more frequently in men than women (2:1). Age of disease onset usually peaks in the second and third decades of life. Approximately 80% of patients with AS experience symptoms at ≤ 30 years of age, while only 5% will present with symptoms at ≥ 45 years of age.

Will I end up in a wheelchair with ankylosing spondylitis? ›

Will I end up in a wheelchair with ankylosing spondylitis? Some people with ankylosing spondylitis may experience severe disability if the spinal bones fuse and symptoms affect the joints. However, this is not the case for all people. It is best for a person to contact their doctor to discuss their specific outlook.

How would you describe ankylosing spondylitis pain? ›

If you have ankylosing spondylitis, you may have pain and stiffness at night, in the morning, or when you're not active. The pain may begin in the joints between your pelvis and spine and then move along your spine. Your pain may get better with movement or exercise.

What are the symptoms of ankylosing spondylitis inflammation? ›

What are the symptoms of ankylosing spondylitis?
  • Back pain, usually most severe at night during rest.
  • Early morning stiffness.
  • Stooped posture in response to back pain (bending forward tends to relieve the pain)
  • Straight and stiff spine.
  • Inability to take a deep breath, if the joints between the ribs and spine are affected.

How do you know if ankylosing spondylitis is getting worse? ›

The way ankylosing spondylitis (AS) progresses, or changes over time, can be different for different people. Some people never have symptoms beyond back pain and stiffness that come and go. Others may go on to have movement problems, a hunched posture, or eye, digestive, or nerve problems.

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